Skip to main content

System Performance

Caregiver Distress Report

The Reality of Caring report takes a look at caregiver distress in relation to long-stay home care patients in Ontario. It examines the growth of distress, anger, depression and the inability to continue providing care among unpaid caregivers, as well as what has changed in recent years that may help explain this increase.

The report also offers an intimate perspective on caregiver distress, as provided by a panel of caregivers with long-term experience looking after ill, elderly or disabled family members, friends or neighbours.

As the population of Ontario becomes collectively older, we hope to shed light on the important role unpaid caregivers play in Ontario’s health system and the need to focus on their needs as much as the needs of the patients they look after.


Read the full report: The reality of caring


To learn more:


If you have a question about The Reality of Caring, or other ways we report on health system performance in Ontario, please email us at SystemPerformance@HQOntario.ca.



Transcript (PDF)

Let’s make our health system healthier

Join Our Patient, Family and Public Advisors Program

Patients, families and the public are central to improving health quality.


Claude Lurette and Kowsiya Vijayartnam, Health Quality Ontario Patient, Family and Caregiver Advisors Council Co-Chairs

Sign up for our newsletter

Are you passionate about quality health care for all Ontarians? Stay in-the-know about our newest programs, reports and news.

Health Quality Connect - Health Quality Ontario's newsletter - on an iPad and a cell phone